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What can I find out about my donor?

Finding out about your donor, can be an emotional process.  The HFEA records information on donors and on any children conceived as a result of their donation.  They have a record of all births as a result of assisted reproduction from licensed UK fertility clinics from 1st August 1991 - the date the HFEA was set up - and onwards.

What information will I be able to receive ?

Different donors will have provided different amounts and types of information.   Some donors may have only provided a small amount of information, others will have provided a more detailed description about themselves as a person.  The information you receive, depending on what your child's donor provided, could include:

  • A physical description of the donor (height, weight, eye and hair colour)
  • The year and country of the donor's birth.
  • The donor's ethnicity
  • Whether the donor had any children at the time of donation, how many and their gender.
  • The donor's marital status.
  • The donor's medical history.
  • A goodwill message from the donor to any potential children.

You can have access to the investigations completed by your donor. Screening normally consists of blood tests:

  • HIV
  • Hepatitis B
  • Hepatitis C
  • Syphillis
  • CMV
  • Chlamydia
  • Gonorrhoea
  • Chromosome analysis
  • Cystic fibrosis carrier status
  • Haemaglobinopathy

Once you give birth to a child as a result of donation, you can obtain information regarding the sex, year of birth of your child's donor conceived siblings.

What information will my child be able to receive ?

When your child reaches 18 years of age they are able to apply to receive identifying information about your donor, if it is available.

From the age of 16, the child will be able to access non-identifiable information:

  • Physical description (height, weight, and eye, hair and skin colours)
  • Year and county of birth
  • Ethnic group and the ethnic group(s) of the donor's parents
  • Whether the donor had any genetic children when they registered, and the number and sex of those children.
  • Other details the donor may have chosen to supply (eg, occupation, religion and interests)
  • Whether the donor was adopted or donor conceived (if they were aware of this)
  • Martial status (at the time of donation)
  • Details of any screening tests and medical history.
  • Skills
  • Reason for donating
  • A goodwill message and
  • A description of themselves as a person (pen potrait)
  • Anonymous information about any donor conceived genetic siblings from the age of 16.  Once the child is 18 they can access identifying information about donor-conceived genetic siblings with mutual consent.

The donor conceived person will be able to access information about the possibly of being related to the person they intend to marry or enter into a civil partnership with, at any age, and information about the possibility of being related to the person they intend to enter into an intimate physical relationship with.

When they are 18, they can access information including name, last known address and characteristics.

What can my donor find out about me?

Your donor is entitled to find out the number of people born as a result of their donation, their sex and year of birth.

Donors are not able to get in contact with their donor-conceived offspring; the decision to initiate contact is solely that of the donor-conceived child, once they reach 18, if they have an identifiable donor.